UK Keratoconus Self-Help and Support Association

Today Claire Sisko on the news, a registered blind person speaking about being called a faker because of makeup, using a mobile phone, I'm sure many of us can relate to this, the difficulty of being at opposite ends of the chart with & without lenses for example.

Variable visual impairment via registration looks impossible, but asking optometry to issue a card or template letter would be within possibility, but it needs to come from a patient group.

As someone unable to get sight improvement or glasses so is registered blind anduses a long cane due to KC (and other things picked up along the way) i find myself having to regularily remind sighted folx that “blind” is a spectrum n not just a case of lights on. Or off so to speak. I am frequentlyadked how i use my phone, have had kids, wear make up, dye y hair, and do all manor of things. There is no right or wrong way to be blind. But what irks me is when i hear “ i am blind without my glasses” well no actually your not as your glasses give you usable vision i n many others can only dream of having so dont use your privlidge as a weapon against us as it isnt a game of top trumps

Absolutely agree