Too much!

General forum for the UK Keratoconus and self-help group members.

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Mandy
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Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: London

Too much!

Postby Mandy » Sun 06 Aug 2006 6:36 pm

Hi
I just got my first pair of RGP's about two weeks ago. I was diagnosed with KC about 2 months ago.

I have 20/20 vision with my lenses which is fantastic but I'm finding that sometimes its just too overwhelming what I can see and everything is so bright that it is giving me headaches.

I'm guessing that this is usual?
Mandy

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Amarpal
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Posts: 227
Joined: Mon 20 Feb 2006 11:16 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Postby Amarpal » Sun 06 Aug 2006 8:24 pm

Mandy

Yes it is normal, as I'm sure everyone else will let you know too. You will probably get used to it soon. Wear sunglasses if you can when you are out and about, adjust computer monitors so that it is comfortable on your eyes.

Best wishes for the rest of your lens wear!
Amarpal

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James Colclough
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Joined: Mon 15 May 2006 4:14 pm
Location: Surrey

Postby James Colclough » Sun 06 Aug 2006 8:44 pm

Keep the lenses clean and treat them with great care.

I agree Amarpal about the sunglasses, good idea alos to keep the eyes lubricated, I use blink, available in single dose vials.


Best of luck.

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asylumxl
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Posts: 104
Joined: Mon 09 Jan 2006 8:31 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Postby asylumxl » Sun 06 Aug 2006 9:04 pm

i have the same problem, but im waiting till i get my rgps, and i hopefully get 20/20, so i can get non prescription ones. sunglasses do help anyway.

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Damien W
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Posts: 36
Joined: Sat 05 Aug 2006 11:08 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Rockingham WA

Postby Damien W » Mon 07 Aug 2006 7:52 am

I have to agree, bright light is a killer.

When you get some sunglasses can I suggest that you get rap around style that cover as much of your eyes as possible and fit as close to the skin (cheeks etc) as possible.

There are 2 reasons for this;
1. To stop wind getting into your eyes and drying them out causing your contacts to fall out (may happen, not a definate tho)
2. To stop all bright light even form the side as this can annoy you as well.
3. IF the contact falls out the glasses MAY catch it, you never know.

I use safety glasses when doing anything but driving as I find they give all that I have suggested and they are 99% uv

For driving I use a good pair of Bolle sunnies as there is little chance of windy condidtions inside a car.

Damo

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Val G
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Posts: 219
Joined: Wed 12 Oct 2005 7:01 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: West Midlands

Postby Val G » Mon 07 Aug 2006 6:12 pm

I seem to go around switching the lights off in our house, for comfort, not just to save electricity! I have been known to watch TV in my sunglasses as I often find it too bright.

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Alison Fisher
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Posts: 334
Joined: Sat 18 Mar 2006 12:56 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Leicester

Postby Alison Fisher » Tue 08 Aug 2006 2:58 am

Val Graham wrote:I have been known to watch TV in my sunglasses as I often find it too bright.


I've been known to do that as well Val. :D

Where practical we've got dimmer switches fitted all round the house so I can adjust the lighting levels to suit me.

Mandy - it sounds very familiar and usual to me. If things are still too bright in sunglasses try combining them with a hat. Even a small brim cuts down on the amount of light reaching your eyes. 8)
grafts in 1992 and 1996

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Anne B
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Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Hertfordshire

Postby Anne B » Tue 08 Aug 2006 7:39 am

I took my children to our local outdoors swimming pool on a very sunny day. I was actually in pain because of the glare from the water. I had too get out in the end and lay on the grass with a T shirt over my head and leave hubby with the kids (KC does have it plus sides :lol: )
Also on sunny days i have real problems hanging white washing on the line to dry!

So when its too bright i can't see and when its to dark i can't see :roll: :?

Anne

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Andrew MacLean
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Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Tue 08 Aug 2006 11:08 am

Ditto, snap.

sunglasses are part of the kit for the person with KC. Some people go for a fashion statement, but being of an older disposition I have been liberated from all such considerations and just wear the biggest and most practical pair I can find.

Yours aye

Andrew
Andrew MacLean

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GarethB
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Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Tue 08 Aug 2006 2:37 pm

Since using Systane which has inproved lens comfort and being better hydrated over the past 8 months my light sensitivity has dramatically gone down which I attribute to the irritation I my cornea was experiencing although it did not feel that way to me!

Spent 14 hours ata photo shoot in the bright sun and still spot lights and flashes are used and rarly did I have the need to resort to the dark glasses.
Gareth


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