UK Keratoconus Self-Help and Support Association

Posted: **Thu 27 Jul 2006 1:17 pm**

Well just when i thought i had it sorted, i go to a scleral lens fitting and get 20/20 vision :shock:

Went to Moorfields yesterday and tried scleral lenses and they seemed to be great. So ithink i am going to give them a try.
The only problem is when i asked how long it will take to get them they said about 9 weeks. So i said that it will be to late in 9 weeks because i am haing a graft in 8 weeks!!
It may seem like i am being awkward but i am so fed up with waiting to be able to see. Surely thats not to much to ask for.Anyway they said they would rush them through and will contact me next week! I am not holding my breath :lol:

So it looks like the grafts on hold for a while.

Posted: **Thu 27 Jul 2006 1:55 pm**

Anne

They are pretty good if its cases such as yours......Id like to think they will deliver in maybe even 4-6 weeks.....quickest I ever had one from them was 2 weeks!....where I had limited vision as my other eye was sore....and this i could onlywear the rgp for like 6 hours a day.

But do call them up!.....dont be shy and think your being a pain!.....OH and if you get through to someone ASK FOR THERE NAME!...I cant stress this...as I have been lied to and fobed off soo many times when calling before.....

J

Posted: **Thu 27 Jul 2006 11:25 pm**

Is there any point in any of our experiences of KC that we're not waiting for something?

We must end up being among the most patient people on the planet. :lol:

I hope you get it sorted asap Anne, and don't forget to keep breathing. :wink:

Posted: **Fri 28 Jul 2006 8:49 am**

Yeah your right Jay, I did get the name and number of the lady that fitted my lenses ( only because she gave it to me! Don't tell hubby that :lol:

) And i will be ringing her on Wednesday if havn't heard anything.

Alison i agree with you we are all very patient and polite. but i am losing it now! If i still havn't got any thing sorted out for christmas plays this year (i will have 3 to go to) i am going to moorfields and i will stand in clinic 4 and SCREAM until i get the best lenses ever :evil:

(well it works for my kids) :lol:

Posted: **Fri 28 Jul 2006 2:16 pm**

Either scream until you get your lenses or until you are sick!

Posted: **Fri 28 Jul 2006 4:02 pm**

..and make sure you're sick over them

Posted: **Fri 28 Jul 2006 4:48 pm**

Well if i have the need to go to clinic 4 and scream i will let everyone know, so that you can come with me. Perhaps we could open it up as a KC social :idea:

Posted: **Fri 28 Jul 2006 4:56 pm**

sounds good, Andrew can wear his kilt, Gareth can wear his tutu and I'll scream with you

Posted: **Sat 29 Jul 2006 6:29 pm**

I scream
You scream
We all scream together.

Sooner or later they will notice and do anything just to get us to shut up!

(by the way, I'm thinking that Lousie must have noticed that Ice Cream and I Scream sound the same. so mine's a toffee ripple)

Posted: **Sat 29 Jul 2006 9:24 pm**

B&J's all round Andrew!!

Talking of screaming [this is for real] I was so worn down with the council drilling the outside the building over weeks 8am-4pm and it's impossible to have a phone call because it's so loud, in the heat and with yet another headache I found myself screaming in frustration. I mean full-on Hammer Horror screaming! God knows what the neighbours thought...