UK Keratoconus Self-Help and Support Association

My hydrops is finally starting to clear slowly in my right eye after three months. Although I can still not read anything, I can tell what objects are - before I could just make out shades of colour!

The vision is really distorted though, even by KC standards!

Is this because the pupil is half-clear and half-covered?

I think I need to wear a patch while it's cleaing...

Craig

I am delighted to know that your hydrops is clearing. I hope the process gathers pace now that it has begun.

I'm presuming that you are not wearing a lens in the affected eye.

The brain has an odd habit of trying to make sense of distorted images. The cells fire in your occipital lobe and it is almost as if your brain compares this particular set of synaptic events to all previous experiences. If nothing fits your brain will make a guess and you will "see: what may not be there.

At one time I was "seeing" all sorts of things as my brain struggled to make sense of the paucity of sensory date being transmitted from my eyes. Now that I can see more clearly I am aware of how much beauty I missed.

A patch might be a good idea, at least for part of the time, as it would mean that for some purposes you were not receiving confusing data that you were processing along with the clearer data from your non-hydrops eye. Before going out to buy one, though, I think I'd run the idea past your optometrist or even your ophthalmologist.

Andrew

Craig

Good to see things are getting better......however the reason for the not so clear vision is hard to say without someone seeing your eye......it could be scarring, it could the that the cornea is still waterlogged, or it could still be healing......so really hard to say

HTH

J

Has anyone here had a positive result after hydrops? Obviously the cornea does not go back to the shape it was beforehand, and I have seen on the net that in some rare cases it is actually better than pre-hydrops.

Many years ago I wore a patch for a while, it helped

Craig,

At the AGM I was talking to aldy who had recoverd from hydrops and the resultant scarring had strengthened the cornea in the region of the hydrop. The result was that once healed her vision was lsightly better and made sight correction easier.

Mr Tuft the guest speaker said that long ago hydrops were induced in specific parts of the cornea depending where the KC cone was to cause the cornea to flatten. The results were apparently very hit and miss so went out of favour.

Hi Craig,
Glad to hear the hydrops is clearing at last - that's quite a long time, but not unprecedented, I think.
Distorted vision is probably because it is still clearing and hasn't fully cleared yet - but the experts should be able to judge that better from looking at you.
I've had 4 hydrops and survived tham all without needing grafts - first one healed over with hardly any scarring, others, well, they settled down in time and I'm living with them.
Hope the clearing up goes a pace now it's going.
ROsemary