UK Keratoconus Self-Help and Support Association

hello everyone I am 16 and have been newly diagnosed in both eye and also glaucoma and birth defect back of eye and sever eye allergies which I am on prescription drops 6 times a day

Hello AlJoRuB
Welcome to the forum. I;m sorry to hear about your cocktail of complaints, but it is good to see you posting here.
Every good wish
Andrew

Wow sorry to hear about everything you have to cope with. Fire away if you have any questions about keratoconus or any methods of coping I found more information here than I ever did from the NHS!

hi everyone thanks for your comments sorry I have not replied sooner I have autism so I have a lot of other problems going on :
at the moment the most worry is not be able to do my hobby which is lego but why should having bad vision stop me keratoconus is not a blinding condition even though it feels like it at least I will always have some vision

Hi AlJoRuB, how frustrating, I do sympathise, I like lego too!
Have you told your eye doctor how important it is for you to be able to do your hobby?
Do you have any glasses or contact lenses?

Hi thanks for replying, at the moment i am wearing glasses and have a rgp fitting on the 3rd of march, i was supposed to have a appointment in January as i was diagnosed in december but it came to the 17th of Jan and still had no letter phoned up and they said i have now been discharged as had a appointment on the 9th of Jan but i didn't know anything about it had no letter or phone call, and i didn't really speak to my doctor much as at first they didn't know what was wrong so had to have loads of tests and he gave me the results said i has keratoconus and would need contacts and that was it so i don't rely no what to do

Hopefully the RGP's will get you back to the lego.
I wear an RGP, and other people here do, so please do ask questions, between us we can offer some tips on managing them