UK Keratoconus Self-Help and Support Association

and the eye drops are doing what they are supposed to.

They investigated the tears alot more after the initial success of Systane and they are breaking up very quickly, so still on Systane. I asked if they could prescribe a six month quantity which would cost just the one prescription charge rather than £4 a bottle, but as it is not on there list they can not

They were surprised I could hit 15 hours lens wear provided I remove my lenses that is at regular intervals for a Systane top up!

Been advised to keep it closer to 12 hours with at least 1 day per week off which is doable.

We went back through my records to educate the student that was sitting in. Only three in the consultaion room (that includes me) so ticket sales are down on preveous visits.

This did show from when my local optician (who now works at the hosptal as a consultant) my vision has not changed since March 2004 which is just over two years now. My lenses are exactly 18 months old from when I left the hospital with them.

Had my ups and downs with lens tolerance, allergic reactions to the lenses and the magical migrating lens. However since finding the best strategy for the only drops that appear to do anything of use then lens has pretty much behaved over the last 4 months.

So fingers crossed the KC will stay stable for the next six months and beyond and the drops will still keep on working.

Hope everyone else with a hospital visit in the near future will have great news too.

I never had lenses as long as that! Well done Gareth.

It's good to hear good news.

Andrew

Wow, I'm impressed with the stability of your vision Gareth. Long may it continue.

I felt it waranted a post because the question is often asked 'Does KC stabalise and how long for?'

Well I feel I am proof KC does stabilise in some.

How long for is something I will never ba able to answer, I just count my blessings every day that I am still able to manage the lens strategy me and the hospital devised through December 05 and January 06. At that point they were ready to register me clinically blind in my right eye.

They did give the cautionary note that if the management strategy falls apart, there is nothing lens wise they can do for my right eye!

On the home page there is a link to a company wanting to research a soft lens for KC and post graft. I have sent off a letter to discuss this research further. While the eyes are stable, now is the time to help research a new lens that might help me when the current system does fail.

'Prepare for the unexpected and the unexpected never happens!'

Gareth is a little out of date. The study is no longer on the home page, but hereinstead.

John,

You are a smart a**e

So the home page has Features where it mentions Articles and studies about KC.

Euforia adles the brain at times plus I am still catching up on lost sleep.

Thanks for adding the link

This is good news Gareth and give hope those of us who or new to the KC bandwagon.

Also David is now using the Systane drops and they are working for him - good news is the headaches have stopped

Carole

Does that mean you can potentially get back to racing? or is that a no no

Never back to racing unless the condition regresses.

To race I need to achieve a minimum uncorrected vision which I fail by a wide margin.

Great news Gareth.

I've got Moorfields tomorrow. Not looking forward to it.

Anne