Thanks for all this info!
I don't know which one i have yet, am awaiting to be seen by a MS specialist and a MS nurse. I have also just phoned the consultant back and left a message for another appointment as i'm not taking this in. I remember her saying i have a few lesions on the brain scan and one on the spinal cord and have had three episodes in two years of weakness etc. Just hoping that i don't get any more.
I have joined a forum though to be honest i don't know which one it is now!! I will look into it as i do need some help and i know that this forum isn't the right place to post this. Was just thinking that others here might know someone with MS so have some info.
Thanks again!
MS - Needing some help please
Moderators: Anne Klepacz, John Smith, Sweet
Sweet, If it does have to be MS I hope its the most mildest type there is... and will be that way! I hope you got mis-diagnosed!! It does happen, get a second opinion if you can Sweet...
Insurers, (going by what my friends has experienced), only care if DVLA puts on any restrictions on your license (which it may not happen at all, and could be just to tell them IF things change... that's if your consultant gives the go ahead). I don't know with MS, but with other things, it could be things like taking more frequent driving tests, what time of day you can drive. With diabetes for example, it only matters to them if you are driving a large lorry or if your on insulin. So I don't think they will stop you from driving if you can do.
The waiting is the worst part i would imagine, I would personally see someone privately if the waiting is getting to be too much or you need a second opinion. I did the internet thing of looking up info. for "suspected" diagnoses for family, it turned out (a few times now... and each time!) that what was written is not tailored to any ones individual circumstances, and it was the wrong thing to do (as there was no diagnoses made in the end as they had nothing!). What actually does happen and the worry that goes with it, i found is disproportionate by a very long way, however its good to read, if it helps to ask questions about your health with a health professional, so then all is clear.... its the time needed to spend talking about these things with someone who knows which would help a lot for any person, I feel.
Hoping the best for you
Insurers, (going by what my friends has experienced), only care if DVLA puts on any restrictions on your license (which it may not happen at all, and could be just to tell them IF things change... that's if your consultant gives the go ahead). I don't know with MS, but with other things, it could be things like taking more frequent driving tests, what time of day you can drive. With diabetes for example, it only matters to them if you are driving a large lorry or if your on insulin. So I don't think they will stop you from driving if you can do.
The waiting is the worst part i would imagine, I would personally see someone privately if the waiting is getting to be too much or you need a second opinion. I did the internet thing of looking up info. for "suspected" diagnoses for family, it turned out (a few times now... and each time!) that what was written is not tailored to any ones individual circumstances, and it was the wrong thing to do (as there was no diagnoses made in the end as they had nothing!). What actually does happen and the worry that goes with it, i found is disproportionate by a very long way, however its good to read, if it helps to ask questions about your health with a health professional, so then all is clear.... its the time needed to spend talking about these things with someone who knows which would help a lot for any person, I feel.
Hoping the best for you
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Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
Thanks everyone.
I have contacted the hospital and the next appointment is in June, but then my consultant phoned me and said that she was glad that i had got in touch as she knew i hadn't taken anything in. She is happy to go through my scan with me in three weeks time.
That is really nice of her. I will be much more settled then and able to think straight.
I just can't take anything in right now so am taking some time out. Please everyone take good care of yourselves! Loads of love and (((Safe hugs)))
I have contacted the hospital and the next appointment is in June, but then my consultant phoned me and said that she was glad that i had got in touch as she knew i hadn't taken anything in. She is happy to go through my scan with me in three weeks time.
That is really nice of her. I will be much more settled then and able to think straight.
I just can't take anything in right now so am taking some time out. Please everyone take good care of yourselves! Loads of love and (((Safe hugs)))
Sweet X x X
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kerrie phillips
- Regular contributor
- Posts: 82
- Joined: Wed 28 Feb 2007 7:34 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: east anglia
I have recntly been looking after a lady with MS .
She had relapsing remitting where over the years she had a few relapses. She was diagnosed and 30 is now 50 and still fairly ok. Some people go years without a relapse,some may have them on and of
The scan shows your brain and spinal cord. what it shows is that the neurons that carry the messages form the brain to your body parts are damaged. they have a protective covering and in MS this covering becomes scarred and hardned. that results in the messages slipping through the net as it were and causes the clumsiness and dropping of things. (tortora & grabowski anatomy and physiology, ross and wilson anatomy and physiology)
The Ms nurses are fantastic assets to have and are there on the end of the phone when ever you need them.
Medications will vary on your condition generally pain killers and something to stop spasms, among others.
Definately use the ms society web site and also have a peek at http://www.nice.org.uk
I have many papers on Ms from journals, which i could always send you copies of.
What ever happens qwhen you go to your appointment tell them what you want out of them, tell them what has changed the most for you what has affected you the most.
How you cope and respond to treatment can also be psychological in the sense of your perception to life and what you are now going through also, inclusive of your support network.
The Ms nurses and team are there for you so use them
good luck kerrie
She had relapsing remitting where over the years she had a few relapses. She was diagnosed and 30 is now 50 and still fairly ok. Some people go years without a relapse,some may have them on and of
The scan shows your brain and spinal cord. what it shows is that the neurons that carry the messages form the brain to your body parts are damaged. they have a protective covering and in MS this covering becomes scarred and hardned. that results in the messages slipping through the net as it were and causes the clumsiness and dropping of things. (tortora & grabowski anatomy and physiology, ross and wilson anatomy and physiology)
The Ms nurses are fantastic assets to have and are there on the end of the phone when ever you need them.
Medications will vary on your condition generally pain killers and something to stop spasms, among others.
Definately use the ms society web site and also have a peek at http://www.nice.org.uk
I have many papers on Ms from journals, which i could always send you copies of.
What ever happens qwhen you go to your appointment tell them what you want out of them, tell them what has changed the most for you what has affected you the most.
How you cope and respond to treatment can also be psychological in the sense of your perception to life and what you are now going through also, inclusive of your support network.
The Ms nurses and team are there for you so use them
good luck kerrie
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kerrie phillips
- Regular contributor
- Posts: 82
- Joined: Wed 28 Feb 2007 7:34 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: east anglia
considering that your a nurse. Go to your hospital library if they are as nice as mine get them to do a search for you. Alot of my info i have on MS comes from the BJN and nursing standard. Also as well as nice guidelines there are also NSF'S in place for MS. Which will help you with regards to the condition, whats in place for you and the responsibilities of the speacialist teams to you.
I'm guessing you probably know this though as a nurse.
I'm guessing you probably know this though as a nurse.
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