Thanks for your words, they really cheered me up and gave me hope.
I want to apologise for over reaction I guess with my initial post.
Im not used to being ill, or sick or anything. So when even the slightest thing occurs- it knocks me almost completely off kilter. Coupled with that, when my eyes started playing up- i was recovering from damaging a nerve in both arms from playing football. So I was kinda highly strung
A few months down the line, and whilst every day is still up and down the KC is progressing- im not the worst off person in the world.
Ive fought a long and hard battle with the hospital, made several complaints, and am finally on the road to getting C3XL done.
I think part of what antagonised me so much with the hospital was that i work there, so being literally only a matter of feet away from the people who are taking so long to sort out appointments or are making mistakes,and being in no position to affect that- kinda made me flip.
Plus, they kept telling me id have my topography at different appointments which never materilaised owing to not seeing the same person, and the details not being forwarded on.
Im not someone who normally complains, but the complete screw up in information, and being told one thing then them doing another just exacerbates all your fears (as im sure alot of people have had similar experiences)
Luckily now, after a long drawn out 4 month saga - im now moving onto private care.
Im very lucky that my wonderful girlfriend is lending me the money from her traveling savings to have the procedure done.
The KC i think is progressing, based on my own day to day experiences, but im still coping without anything like contacts or glasses.
One thing I have learnt, is that keraflex is now available - though it very expensive (out of my reach). Which is a crying shame really, as its like having a carrot dangled in front of you in some respects.
Anyway, thats enough about me rumbling on- i just wanted to thank everyone here for thier help,information, kind words and encouragement. Particuarly anne for taking the time and effort to send me stuff through the post. Its all been a massive,massive help. Things seem less hopless than they did back in january.
This forum is a godsend, and is an amazing resource for people with KC.
Thanks again
All the best
Liam