UK Keratoconus Self-Help and Support Association

I've called Broadhusrt's and they've fitted them before and have a photokeratoscopy machine. I know there's a chance they wont work for me, so I'll keep my fingers crossed. I'll let you know how I get on. Thanks everyone.

The Kerasoft IC looks like its best fitted with the aid of a hotokeratoscopy/videokeratography machine. Should I try to find an optician that uses one?

Hi everyone I've asked the hospital to refer me to Mike Broadhurst Opticians. I'll see if I can get anywhere with soft or scleral lenses. Gareth I'm interested in these lenses your using, but I can't find any info on them online. I'm excited about silicone hydrogel lenses, hopefully theses will give...

Thanks for all the responses. Andrew: So I guess to get the CXL treatment I would need to prove it would be unethical to withhold it from me? I don't think I could win that argument with my eyesight in my right eye being good, but isn't CXL supposed to stop the KC from progressing? Is it possible to...

Hi lizb. Yes I read about you CXL treatment. Hows your vision now? I know what you mean about having to push, but I don't think I could afford to go private I've got a house to buy! And why should you have to pay if some NHS PCTs are doing them? If Intacs are all I can get for now I'll do that and g...

Hi Anne, Yes I can't tolerate the RGP contact lenses I've been proscribed. Its only bad in my left eye, so I don't even try any more. That said I went through a phase of wearing them for a couple of months, then stopped when I got an eye infection. I found the discomfort and sensitivity to light (st...

Hi everyone. I live in Preston, Lancashire and went to the Royal Preston Hospital last week. The consultant said he didn't think that Intacs were currently available on the NHS. If it wasn't for this forum I wouldn't know any different. Are there any NHS hospitals (or private ones that treat NHS pat...