UK Keratoconus Self-Help and Support Association

Im actually waiting for some polorised wrap around glasses to arrive through the post- I bought them on ebay and there really funky and stylish- thats what he likes so thats what he gets else he wouldnt wear them!! They have those strip lights in the workshop at the moment and they are like those lo...

oh-I forgot!! A quick question for the professionals or anyone who knows!! He's having a problem with bright lights at work in the workshop he works in but his bosses are unsure on how to rectify this as he has a worktop next to somebody else so he needs the light! How would we sort this without the...

Hi everyone, Just thought I'd keep you all up to date with Jareks's progress(post op 3 weeks) Well, were to I start its been a rocky ride-he has good days and bad days! But mostly good!!!! He is back to work as he got so bored at home but he has only gone back part time to start off with so he doesn...

Hi there, Just to keep you all informed that we went to visit the consultant for jarek's check-up appointment this morning. I voiced my concerns about his left eye not been able to cope with vision by itself even with contact lenses in- the consultant said that he thought this would occur so he is o...

Hi Chris, Im so glad that you have had positive comments from your doctor- I know I dont hav the condition myself but I know when Jarek gets good news I feel more emotional than him, its like a massive achievement, that all the suffering and pain is paying off!! Hang in there and long may the progre...

Thanks for all the good replies, Yes jarek is polish and we live in North Yorkshire, he has been living here for 2 years and now he's staying it was more sensible for him to have the op here!!! Hes had his contact lens in his left eye today and uncovered his eye to light for the first time and has h...

Hi, Thanks Rosemary for those ideas! He has an appointment on Wednesday morning with his consultant so I will raise the problem then!! Ithink I will need to raise it with his KC specialist who fitted his lenses in his left eye- I think the main problem is that he's been in bed since last monday and ...

Hi everyone, A bit of past info, jarek my partner had his graft done last Monday and it went really well and his eye is looking very well!! He has a black patch on his operated eye to protect it from light as he cant stand it!! I have just recently put his contact lens in his other eye and he finds ...

Thanks for all the replies! Im back at work today and Jarek is still in bed been looked after by his sister- I have been able to concentrate all day with worrying about him! I thought to myself at least when he's in best he's resting his eye and not trying to look at the laptop or tv and straining h...

Hi- Just to let you all know that we did go back to the hospital this morning(post op 2 days!)and his surgeon has given him local anaesthetic drops to put in twice a day to kill the pain and drops that make his pupil small so the bright light isnt as bad!! Also upped his steroid drop to every 2 hour...