UK Keratoconus Self-Help and Support Association

Hi Danimarie, I'm so sorry you're having such a hard time after years of managing so well. Though I guess quite a few of us here have had similar experiences and understand how difficult times like this can be. Do you have a sympathetic employer who appreciates the flexibility you need at the moment...

That's great news! All the very best for next week - will be thinking of you.

We're delighted to report that we have a runner in this year's London Marathon. New member Tosin Adebanjo contacted us to say he had got a place in the ballot and could he fundraise for the KC Group. Below is his statement on his fundraising page and a link to the page. We hope all our members will ...

Dr Sangeetha Rao (member and advocate of the Keratoconus Group UK) and Dr Shafi Balal (UCL researcher) are setting up a small Patient and Public Involvement (PPI) group to support keratoconus research. We’re looking for a small number of patients who may be interested in getting involved. What’s inv...

One of our Welsh members has set up a keratoconus group for those of you in Wales. This is the link to join. https://www.facebook.com/groups/831889926514396 As health is devolved in Wales, some aspects of eye care are arranged differently, so I hope this will be a great place to exchange experiences...

Hello and welcome to the forum! It's good to read that you were diagnosed early and that cross-linking has meant KC doesn't have too much effect on your life now. Of course we'd be delighted if you wanted to raise money for us. People have fundraised for us in all sorts of ways in the past - bungee ...

Very best wishes for 2026 - may it be a year of comfortable contact lenses and stable vision! Some of you will be familiar with the annual event that Keratoconus Australia (the equivalent organisation to ours down under) puts on - talks on the latest developments and research, plus talks from people...

There has been a change to the meeting advertised on our home page. Please see the new meeting notice here
https://www.keratoconus-group.org.uk/in ... r-meeting/
All welcome, but do let us know if you're coming.

It's been such a long wait for you. If you were going for a second opinion on the NHS, you probably wouldn't get an appointment much before the end of the year. But for a private second opinion, I think you could just contact Moorfields Private directly https://www.moorfields.nhs.uk/private and hope...

Some of you may subscribe to the NKCF newsletter (The National Keratoconus Foundation, the organisation for KC in the States). There's a really good article on coping with KC in their latest newsletter https://nkcf.org/strategies-for-coping-with-kc/