UK Keratoconus Self-Help and Support Association

Many thanks.

Hello. I had a graft 16 years ago, and have had no major problems since, thankfully. I started swimming about two years ago and love it. However, I noticed yesterday, a few hours after a swim, that my graft eye was red, weepy and paindul. I worried that I was rejecting and hot-footed it to my eye ho...

Yes, it was PK and I presume both new ones will also fall into that category, although I'll find out more on Monday. I've had 16 great years with the present graft. I've just been unlucky that it appears to be going now, coupled with the right one needing done at the same time. That's life. There wa...

It does. Thanks.

Well, there have been a few developments. I now have to get grafts in both eyes, within the year. The graft in my left eye was 16 years ago, and it's in a bit of dofficulty now. The right eye has scarring, so that needs done as well. But I'm cool about it, the operation went well the last time and I...

So, is it possible to wear hard contact lenses every day for 40-50 years, as I hope to?

Thanks, everyone.
Andrew, can I ask what happens if you do become contact lens intolerant?
Are there any alternatives, apart from an implant, or is that it?

Hello, I'd appreciate some advice, please. I've had KC since the age of about 13, I'm now 36. Since my diagnosis, I've worn hard contact lenses in both eyes. I had a graft 16 years ago and everything is cool on that front, although there are remnants of two sutures buried deep in the cornea, which t...

Thanks for that.

Looks like a lifetime of low level anxiety for me, so.

Hello, This is my first post - it's great that this site exists. Congratulations to everyone involved; it has certainly been of great help to me over the past week or so. I have a couple of questions, about possible rejection of my graft, which don't seem to have been covered elsewhere. I'm 36 and h...