UK Keratoconus Self-Help and Support Association

Well thanks for all your advice and info, this is all weighing heavily on me and I need to decide quickly. You have all been really helpful

Speaking of things your KC stops you doing, I have heard somewhere that the thinning of the cornea makes bungy/parachute jumping more dangerous. Has anyone else heard this?

Thanks for your quick responses.

Gareth, you say that your KC returned. I didn't realise this was rare, AFAIK this is why my Dad needed both eyes 'Re-doing'. As my Dad is the only KC I know I had assumed it would return to me also.

This advice is proving useful already

Hi guys, I am 28 and I was diagosed as KC when I was 12 (I think) since then my eyesight has deteriorated quite steadily, around 5 years ago I trid RGP lenses but night driving was worse in the than with my Glasses so coupled with having great difficulty getting the things in and sitting correctly I...