UK Keratoconus Self-Help and Support Association

Thank you for your replies. I do not have my eyes monitored anymore. I found that the inability to close the eyelids completely (during night) is called (nocturnal) lagophthalmos. I'm not sure if this fully covers my problem, because I also have the feeling my eyelids want to be fully open and I nee...

Hello, I'm new here. I'm 21 years old and have been diagnosed with keratoconus for a few years now. I have trouble keeping my eyelids closed when I'm trying to sleep as well as during the night while sleeping. Because of this, it can take some time for me to fall asleep and I often wake up with very...